DISABILITY AND SOCIAL MEDIA: EXPLORING UTILIZATION OF INSTRAGRAM PLATFORM AS A TOOL FOR DISABILITY ADVOCACY
Main Article Content
Keywords
accessibility, advocacy, disability, Instagram, social media, technology
Abstract
Social media such as Instagram has been a tool to facilitate subjective interests of its users, either individually or collectively. Furthermore, Instagram is an effective campaign and advocacy tool for issues like disability and inclusiveness. Therefore, this study aims to explore how this platform is used as an advocacy tool for the disabled and its relation with disability advocacy from the phenomenological approach. The respondents in this study were two actors with disabilities, while the informants were four individuals from the Banjarbilitas group that care about disabilities. Data analysis was carried out using the Social Model of Disability. The discoveries of this study lead to two main points. Firstly, Instagram as a new social media, has transformed into an important networking platform, which provides opportunities for the disabled to advocate and negotiate their existence and that of their groups in relation to equality in society. Secondly, it has provided them with basic access to job vacancies, freedom to express themselves, connect with other individuals and share information and most significantly the opportunity to facilitate both their personal and group interest in order to increase their prosperity and accessibility progressively and comprehensively.
References
Amin, B. (2019). Ulama-Difabel: Menarasikan Ekspresi Kultural Masyarakat Banjar dalam Lensa Studi Disabilitas. Khazanah: Jurnal Studi Islam Dan Humaniora, 17(2), 209-226. https://doi.org/10.18592/khazanah.v17i2.3215
Ananda S, M. (2018). Beradaptasi di Era Industri. Retrieved January 11, 2020, from kompasiana website: https://www.kompasiana.com/melynda25588/5b470217ab12ae455956c0a2/beradaptasi-dengan-era-disrupsi?page=all
Azizah, N., & Rahmatika, A. (2019). Korelasi Penggunaan Gadget Terhadap Kepuasan Komunikasi Interpersonal. Al-Balagh : Jurnal Dakwah Dan Komunikasi, 3(2), 211-234. https://doi.org/10.22515/balagh.v3i2.1436
Caron, J., & Light, J. (2016). “Social Media has Opened a World of ‘Open communication:’†experiences of Adults with Cerebral Palsy who use Augmentative and Alternative Communication and Social Media. Augmentative and Alternative Communication, 32(1), 25–40. https://doi.org/10.3109/07434618.2015.1052887
Caton, S., & Chapman, M. (2016). The Use of Social Media and People with Intellectual Disability: A systematic Review and Thematic Analysis. Journal of Intellectual and Developmental Disability, 41(2), 125–139. https://doi.org/10.3109/13668250.2016.1153052
Diana, C. (2012). Penggunaan Situs Jejaring Sosial Facebook Pada Remaja Disabilitas Intelegensi di Soina Rawamangun. Jurnal Pendidikan Khusus, Vol. 1(1), 98–106.
Ellis, K., & Kent, M. (2011). Disability and New Media. Abingdon, United Kingdom: Routledge.
Gleason, C., Carrington, P., Chilton, L. B., Gorman, B. M., Kacorri, H., Monroy-Hernández, A., Morris, M. R., Tigwell, G. W., & Wu, S. (2019). Addressing the Accessibility of Social Media. Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing - CSCW ’19, 474–479. https://doi.org/10.1145/3311957.3359439
Harahap, R. R. & Bustanuddin. (2015). Perlindungan Hukum Terhadap Penyandang Disabilitas Menurut Convention On The Rights Of Persons With Disabilities (CRPD). Inovatif: Jurnal Ilmu Hukum, 8(1), 17-29.
Interview With Informant HN at 19 Desember 2019. (2019).
Interview With Informant MSN at 15 Desember 2019. (2019).
KBBI Online. (2020). Disrupsi. Retrieved January 11, 2020, from kbbi.web.id, website: https://www.kbbi.web.id/disrupsi
Kerjabilitas. (2020). Tentang. Retrieved January 16, 2020, from kerjabilitas.com website: https://kerjabilitas.com/main_page/kerj-about.php
Kristiansen, K., Vehmas, S., & Shakespeare, T. (Eds.). (2009). Arguing About Disability: Philosophical Perspectives. Abingdon, United Kingdom: Routledge.
Maftuhin, A. (2017). Mendefinisikan Kota Inklusif: Asal-Usul, Teori dan Indikator. Tata Loka, 19(2), 93–103. https://doi.org/10.14710/tataloka.19.2.93-103
Mamase, S., Mohidin, I., & Hulopi, F. (2018). Aplikasi Media Komunikasi Bagi Penyandang Disabilitas Berbasis Android. JTII: Jurnal Teknologi Informasi Indonesia, 3(1), 7–11. https://doi.org/10.30869/jtii.v3i1.180
Mayasari, A. (2018). Kisah Laninka Siamiyono, Difabel yang Merasa “Hidup Kembali†karena Makeup. Retrieved January 26, 2020, from detik.com website https://wolipop.detik.com/entertainment-news/d-4141002/kisah-laninka-siamiyono-difabel-yang-merasa-hidup-kembali-karena-makeup
McMillen, R., & Alter, F. (2017). Social Media, Social Inclusion, and Museum Disability Access. Museums & Social Issues, 12(2), 115–125. https://doi.org/10.1080/15596893.2017.1361689
Mont, D. (2007). Measuring Disability Prevalence. Washington DC, Unites States: World Bank.
Morey, M. (2017). The Effects Of Social Media On The Quality Of Life Of People With Aphasia, The Honors College, 1-35.
Ningsih, Y. B. (2018). Angkie Yudistia Berdayakan Difabel Melalui Thisable Enterprise. Retrieved April 2, 2020, from tempo.co. website: https://cantik.tempo.co/read/1083724/angkie-yudistia-berdayakan-difabel-melalui-thisable-enterprise
Oliver, M. (2009). Understanding Disability: From Theory To Practice (2nd Ed.). London, United Kingdom: Red Globe Press. https://doi.org/10.1007/978-1-349-24269-6
Oliver, M., Sapey, B., & Thomas, P. (2012). Social Work with Disabled People (4th ed). London, United Kingdom: Palgrave Macmillan.
Perwitasari, N. H. (2019). Profil Angkie Yudistia, Penyandang Disabilitas Staf Khusus Jokowi. Retrieved April 2, 2020, from tirto.id website: https://tirto.id/profil-angkie-yudistia-penyandang-disabilitas-staf-khusus-jokowi-el84
Rahmania, A. (2019). Retrieved January 2, 2020, from instagram wesbite: https://www.instagram.com/p/B4nxGOwgtrD/
Ro’fah. (2015). Teori Disabilitas: Sebuah Review Literatur. SIGAB: Jurnal Difabel, Vol 2(2), 137–160.
Rovasita, S. (2017). Sharing Experience dan Resiliensi: Studi atas Facebook Group Orang Tua Anak Cerebral Palsy. INKLUSI, 4(1), 119-148. https://doi.org/10.14421/ijds.040106
Salim, I. (2015a). Perspektif Difabilitas dalam Politik Indonesia. SIGAB: Jurnal Difabel, 2(2), 227–258.
Salim, I. (2015b). Perspektif Disabilitas dalam Pemilu 2014 dan Kontribusi Gerakan Difabel Indonesia bagi Terbangunnya Pemilu Inklusif di Indonesia, The POLITICS: Jurnal Magister Ilmu Politik Universitas Hasanuddin, 1(2), 127-156.
Saujana. (2020). Kerjabilitas. Retrieved January 16, 2020, from https://saujana.org/wp/portfolio/kerjabilitas/
Siamiyono, L. (2020). Retrieved February 28, 2020, from instagram website: https://www.instagram.com/p/BraL8hHA7u8/
Stone-MacDonald, A., & Butera, G. D. (2014). Cultural Beliefs and Attitudes about Disability in East Africa. Review of Disability Studies: An International Journal, 8(1).
Sweet, K. S., LeBlanc, J. K., Stough, L. M., & Sweany, N. W. (2020). Community Building and Knowledge Sharing by Individuals with Disabilities Using Social Media. Journal of Computer Assisted Learning, 36(1), 1–11. https://doi.org/10.1111/jcal.12377
This Able Enterprise. (2018). Tentang Thisable. Retrieved January 18, 2020, from thisable.or.id website: http://www.thisable.or.id/s/tentang-thisable-26
Undang-Undang Republik Indonesia Nomor 8 Tahun 2016 Tentang Penyandang Disabilitas. (2016).
United Nations Human Rights Office The High Commisioner. (2018). Human rights of persons with disabilities. Retrieved November 20, 2018, from: ohchr.org wesbite: https://www.ohchr.org/en/issues/disability/pages/disabilityindex.aspx
Ananda S, M. (2018). Beradaptasi di Era Industri. Retrieved January 11, 2020, from kompasiana website: https://www.kompasiana.com/melynda25588/5b470217ab12ae455956c0a2/beradaptasi-dengan-era-disrupsi?page=all
Azizah, N., & Rahmatika, A. (2019). Korelasi Penggunaan Gadget Terhadap Kepuasan Komunikasi Interpersonal. Al-Balagh : Jurnal Dakwah Dan Komunikasi, 3(2), 211-234. https://doi.org/10.22515/balagh.v3i2.1436
Caron, J., & Light, J. (2016). “Social Media has Opened a World of ‘Open communication:’†experiences of Adults with Cerebral Palsy who use Augmentative and Alternative Communication and Social Media. Augmentative and Alternative Communication, 32(1), 25–40. https://doi.org/10.3109/07434618.2015.1052887
Caton, S., & Chapman, M. (2016). The Use of Social Media and People with Intellectual Disability: A systematic Review and Thematic Analysis. Journal of Intellectual and Developmental Disability, 41(2), 125–139. https://doi.org/10.3109/13668250.2016.1153052
Diana, C. (2012). Penggunaan Situs Jejaring Sosial Facebook Pada Remaja Disabilitas Intelegensi di Soina Rawamangun. Jurnal Pendidikan Khusus, Vol. 1(1), 98–106.
Ellis, K., & Kent, M. (2011). Disability and New Media. Abingdon, United Kingdom: Routledge.
Gleason, C., Carrington, P., Chilton, L. B., Gorman, B. M., Kacorri, H., Monroy-Hernández, A., Morris, M. R., Tigwell, G. W., & Wu, S. (2019). Addressing the Accessibility of Social Media. Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing - CSCW ’19, 474–479. https://doi.org/10.1145/3311957.3359439
Harahap, R. R. & Bustanuddin. (2015). Perlindungan Hukum Terhadap Penyandang Disabilitas Menurut Convention On The Rights Of Persons With Disabilities (CRPD). Inovatif: Jurnal Ilmu Hukum, 8(1), 17-29.
Interview With Informant HN at 19 Desember 2019. (2019).
Interview With Informant MSN at 15 Desember 2019. (2019).
KBBI Online. (2020). Disrupsi. Retrieved January 11, 2020, from kbbi.web.id, website: https://www.kbbi.web.id/disrupsi
Kerjabilitas. (2020). Tentang. Retrieved January 16, 2020, from kerjabilitas.com website: https://kerjabilitas.com/main_page/kerj-about.php
Kristiansen, K., Vehmas, S., & Shakespeare, T. (Eds.). (2009). Arguing About Disability: Philosophical Perspectives. Abingdon, United Kingdom: Routledge.
Maftuhin, A. (2017). Mendefinisikan Kota Inklusif: Asal-Usul, Teori dan Indikator. Tata Loka, 19(2), 93–103. https://doi.org/10.14710/tataloka.19.2.93-103
Mamase, S., Mohidin, I., & Hulopi, F. (2018). Aplikasi Media Komunikasi Bagi Penyandang Disabilitas Berbasis Android. JTII: Jurnal Teknologi Informasi Indonesia, 3(1), 7–11. https://doi.org/10.30869/jtii.v3i1.180
Mayasari, A. (2018). Kisah Laninka Siamiyono, Difabel yang Merasa “Hidup Kembali†karena Makeup. Retrieved January 26, 2020, from detik.com website https://wolipop.detik.com/entertainment-news/d-4141002/kisah-laninka-siamiyono-difabel-yang-merasa-hidup-kembali-karena-makeup
McMillen, R., & Alter, F. (2017). Social Media, Social Inclusion, and Museum Disability Access. Museums & Social Issues, 12(2), 115–125. https://doi.org/10.1080/15596893.2017.1361689
Mont, D. (2007). Measuring Disability Prevalence. Washington DC, Unites States: World Bank.
Morey, M. (2017). The Effects Of Social Media On The Quality Of Life Of People With Aphasia, The Honors College, 1-35.
Ningsih, Y. B. (2018). Angkie Yudistia Berdayakan Difabel Melalui Thisable Enterprise. Retrieved April 2, 2020, from tempo.co. website: https://cantik.tempo.co/read/1083724/angkie-yudistia-berdayakan-difabel-melalui-thisable-enterprise
Oliver, M. (2009). Understanding Disability: From Theory To Practice (2nd Ed.). London, United Kingdom: Red Globe Press. https://doi.org/10.1007/978-1-349-24269-6
Oliver, M., Sapey, B., & Thomas, P. (2012). Social Work with Disabled People (4th ed). London, United Kingdom: Palgrave Macmillan.
Perwitasari, N. H. (2019). Profil Angkie Yudistia, Penyandang Disabilitas Staf Khusus Jokowi. Retrieved April 2, 2020, from tirto.id website: https://tirto.id/profil-angkie-yudistia-penyandang-disabilitas-staf-khusus-jokowi-el84
Rahmania, A. (2019). Retrieved January 2, 2020, from instagram wesbite: https://www.instagram.com/p/B4nxGOwgtrD/
Ro’fah. (2015). Teori Disabilitas: Sebuah Review Literatur. SIGAB: Jurnal Difabel, Vol 2(2), 137–160.
Rovasita, S. (2017). Sharing Experience dan Resiliensi: Studi atas Facebook Group Orang Tua Anak Cerebral Palsy. INKLUSI, 4(1), 119-148. https://doi.org/10.14421/ijds.040106
Salim, I. (2015a). Perspektif Difabilitas dalam Politik Indonesia. SIGAB: Jurnal Difabel, 2(2), 227–258.
Salim, I. (2015b). Perspektif Disabilitas dalam Pemilu 2014 dan Kontribusi Gerakan Difabel Indonesia bagi Terbangunnya Pemilu Inklusif di Indonesia, The POLITICS: Jurnal Magister Ilmu Politik Universitas Hasanuddin, 1(2), 127-156.
Saujana. (2020). Kerjabilitas. Retrieved January 16, 2020, from https://saujana.org/wp/portfolio/kerjabilitas/
Siamiyono, L. (2020). Retrieved February 28, 2020, from instagram website: https://www.instagram.com/p/BraL8hHA7u8/
Stone-MacDonald, A., & Butera, G. D. (2014). Cultural Beliefs and Attitudes about Disability in East Africa. Review of Disability Studies: An International Journal, 8(1).
Sweet, K. S., LeBlanc, J. K., Stough, L. M., & Sweany, N. W. (2020). Community Building and Knowledge Sharing by Individuals with Disabilities Using Social Media. Journal of Computer Assisted Learning, 36(1), 1–11. https://doi.org/10.1111/jcal.12377
This Able Enterprise. (2018). Tentang Thisable. Retrieved January 18, 2020, from thisable.or.id website: http://www.thisable.or.id/s/tentang-thisable-26
Undang-Undang Republik Indonesia Nomor 8 Tahun 2016 Tentang Penyandang Disabilitas. (2016).
United Nations Human Rights Office The High Commisioner. (2018). Human rights of persons with disabilities. Retrieved November 20, 2018, from: ohchr.org wesbite: https://www.ohchr.org/en/issues/disability/pages/disabilityindex.aspx