Lived experiences of a Tagasalo having siblings with special needs: An educational implication
DOI:
https://doi.org/10.22515/jemin.v3i2.8618Keywords:
lived experience, phenomenological study, Philippine educational culture, tagasaloAbstract
Abstract
This study focuses on the lived experiences of individuals with siblings with special needs as their tagasalo. It is deeply rooted in Filipino culture and refers to an individual who selflessly takes on the role of a caregiver. This role involves providing support to the family. This study utilized a phenomenological study. An interview guide question was used to gather data. The result of the study showed that the experiences of individuals as tagasalo are challenging. The themes that emerged were Responsibilities of Individuals to their Siblings with Special Needs with the subthemes (1) Assuming the Parental Responsibility from the parents (2) Taking care of their sibling with special needs. Participants’ Support to their Siblings with Special Needs with subthemes (1)Being there for their sibling, (2) Serving as a Defender for their sibling with special needs, (3) Providing Financial Support, (4) Offering Educational Support, Challenges Encountered as Tagasalo of their Sibling with Special Needs with the subthemes (1) Feeling overwhelmed leading to burnout, (2) Facing Additional Financial burden, Managing the encountered challenge with the subthemes (1) Resilience and Spiritual Guidance, (2) Initiative and Proactive Thinking, and Participants insights of Having Siblings with Special Needs were the subtheme such as (11) Developing Self-awareness of Personal growth, (12) Experiencing the Ripple Effects of Personal Development. The tagasalo used their experiences to become better people and responsible individuals. These can provide a safe space to share experiences and emotions.
Downloads
References
Aguboshim, F., & Otuu, O. (2023). Examining the influence of sibling structure on academic performance: A comparative study of younger and elder siblings. World Journal of Advanced Research and Reviews, 18(3), 699–710. https://doi.org/10.30574/wjarr.2023.18.3.1131
Ampong, Y., Delos Santos, C., & Tolosa, M. (2018). An interpretative phenomenological analysis on the concept of family among abandoned young adults with physical disability. International Journal of Social Sciences, 4(3), 105–122. https://doi.org/10.20319/pijss.2018.43.10512
Andres, T. D. (1989). Positive Filipino Values. Quezon City: New Day Publications. Retrieved from https://opac.quezoncitypubliclibrary.org/cgi-bin/koha/opac-
Atenas, P., Bobis, C. F., Maghanoy, C. J., Manondo, M., Perez, G. M., & Tucay, L. (2018). Ang Pagsalo: A parentification study among female adolescents. Retrieved from https://www.academia.edu/38423411/Ang_Pagsalo_A_Parentification_Study_Among_Female_Adolescents_pdf
Capuno, J., Mendoza, A., & Morillo, H. (2013). Views and values on family among Filipinos: An empirical exploration. Asian Journal of Social Science, 41(1), 5–28. https://doi.org/10.1163/156853314-12341278
Carandang, M. L. (1981). The Rubic‟s Cube Approach: A Multi-Dimensional Model for Working with Children. Philippine Journal of Psychology, 21, 24–28. https://psycnet.apa.org/record/1985-20639-001
Carandang, M. L. A. (1987). Filipino children under stress: Family dynamics And therapy. Quezon City: Ateneo de Manila University Press.
Catungal, R. G., Cruz, C. U., & Abadam, M. T. R. (2021). Coping Mechanisms Of Filipino Siblings Of Exceptional Pupils. European Journal of Humanities and Educational Advancements, 2(3), 25–30. https://www.neliti.com/publications/340996/coping-mechanisms-of-filipino-siblings-of-exceptional-pupils
Drzymala, H., Grey, B., & Fowler, N. (2022). Exploring the triadic parent–child–sibling relationship: How do mothers’ view of their children impact sibling relationships? [Review of Exploring the triadic parent–child–sibling relationship: How do mothers’ view of their children impact sibling relationships]. https://doi.org10.1177/26344041221145619
Freitag, V. L., Motta, M. da G. C. da, Milbrath, V. M., Gabatz, R. I. B., & Bazzan, J. S. (2021). Child/adolescent caring for the disabled sibling in the family world. Revista Gaúcha de Enfermagem, 42. https://doi.org/10.1590/1983-1447.2021.20200153
Gomez, I. N. B., & Gomez, M. G. A. (2013). Quality of life of parents of Filipino children with special needs. Education Quarterly, 71(2). https://journals.upd.edu.ph/index.php/edq/article/view/3883
Hayden, N. K., Hastings, R. P., & Bailey, T. (2023). Behavioral adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality. Journal of Intellectual Disability Research. https://doi.org/10.1111/jir.13006
Hou, X.-H., Wang, L.-J., Li, M., Qin, Q.-Z., Li, Y., & Chen, B.-B. (2022). The roles of sibling status and sibling relationship quality on theory of mind among Chinese preschool children. Personality and Individual Differences, 185, 111273. https://doi.org/10.1016/j.paid.2021.111273
Jones, E., Fiani, T., Stewart, J. L., Sheikh, R., Neil, N., & Fienup, D. (2019). When One Sibling has Autism: Adjustment and Sibling Relationship [Review of When One Sibling has Autism: Adjustment and Sibling Relationship]. Journal of Child and Family Studies, 28, 1272–1282. https://doi.org/10.1007/s10826-019-01374-z
Krejčová, K., Chylova, H., & Rymešová, P. (2023). Analysis of siblings’ relationship and parenting style using structure modelling approach. PLOS ONE, 18(2), e0281266. https://doi.org/10.1371/journal.pone.0281266
Kyrkou, N. (2018). Family quality of life and nurturing the sibling relationship. International Journal of Child, Youth and Family Studies, 9(4), 75–87. https://doi.org/10.18357/ijcyfs94201818641
LeBouef, S., & Dworkin, J. (2021). Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being. Adolescents, 1(3), 283–293. https://doi.org/10.3390/adolescents1030021
Longobardi, C., Prino, L. E., Gastaldi, F. G. M., & Jungert, T. (2019). Sibling Relationships, Personality Traits, Emotional, and Behavioral Difficulties in Autism Spectrum Disorders. Child Development Research, 20(19), 1–9. https://doi.org/10.1155/2019/9576484
Mitchell, D. (2023). Attitudes Towards Mental Health, Spiritual Seeking, and Well-Being. Retrieved January 10, 2024, from Digital Commons @ ACU Electronic Thesis and Dissertations. Link
Mohamad, S., Yee, C. S., & Mohamad, Z. S. (2021). The Challenges nd Coping Mechanism Of Adolescents With Siblings With Developmental Disabilities.
Morton, C. (2020). Impact on Sibling Relationship because of Special Need and Hospitalization [Thesis].
Morrow-Kondos, D. (2019, April 19). Benefits of Having a Sibling [Review of Benefits of Having a Sibling].
Orsmond, G. I., & Fulford, D. (2018). Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships. Journal of Autism and Developmental Disorders, 48(12), 4090–4102. https://doi.org/10.1007/s10803-018-3669-8
Power, A., & Bartlett, R. (2019). Ageing with a Learning Disability: Care and Support in the Context of Austerity. Social Science & Medicine, 231, 55–61. https://doi.org/10.1016/j.socscimed.2018.03.028
Quatrosi, G., Genovese, D., Amodio, E., & Tripi, G. (2023). The Quality of Life among Siblings of Autistic Individuals: A Scoping Review. Journal of Clinical Medicine, 12(3), 735. https://doi.org/10.3390/jcm12030735
Salmon, C. A., & Hehman, J. A. (2021). Good Friends, Better Enemies? The Effects of Sibling Sex, Co-Residence, and Relatedness on Sibling Conflict and Cooperation. Evolutionary Psychological Science. https://doi.org/10.1007/s40806-021-00292-y
Schmidtova, V., & Slany, J. (2018). Sibling Relationships of Children with Disability. https://www.researchgate.net/publication/329416135_Sibling_relationships_of_children_with_disability
Sciberras, B. (2018). The Effects of Physical Disability on Siblings [Thesis]. https://www.researchgate.net/publication/329514959_The_Effects_of_Physical_Disability_on_Siblings
Smith, M. (2019). Caregiver Stress and Burnout. HelpGuide.org. https://www.helpguide.org/articles/stress/caregiver-stress-and-burnout.htm
Smith, M. J., Greenberg, J. S., Sciortino, S. A., Sandoval, G. M., & Lukens, E. P. (2016). Life Course Challenges Faced by Siblings of Individuals with Schizophrenia May Increase Risk for Depressive Symptoms. Mental Health in Family Medicine, 12(01). https://doi.org/10.25149/1756-8358.1201003
Tavares, A. P., Martins, H., Pinto, S., Caldeira, S., Pontífice Sousa, P., & Rodgers, B. (2022). Spiritual Comfort, Spiritual Support, and Spiritual Care: A Simultaneous Concept Analysis. Nursing Forum, 57(6). https://doi.org/10.1111/nuf.12845
Udarbe, M. H. (2001). The Tagasalo Personality. Philippine Journal of Psychology, 34(2), 47-62.
Victor, I. N., Hartanti, H., & Elisabeth, M. P. (2021). The Dynamics of Sibling Relationships with a Down Syndrome Child. KONSELI: Jurnal Bimbingan Dan Konseling (E-Journal), 8(1), 99–106. https://doi.org/10.24042/kons.v8i1.8363
Downloads
Submitted
Accepted
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Lindy Chielo I. Pabatang, Janus A. Naparan
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Copyright
Copyright aims to protect the specific way the article has been written to describe an experiment and the results. Journal of Educational Management and Instruction is committed to its authors to protect and defend their work and their reputation and takes allegations of infringement, plagiarism, ethical disputes, and fraud very seriously. Automotive Experiences is published under the terms of the Attribution-NonCommercial 4.0 International (CC BY-NC 4.0). Authors retain copyright and grant the journal right of first publication (online and print) with the work simultaneously. We use the restrictive license (non-commercial) as follows:
BY (attribution): Users are allowed to share, distribute and redistribute the published article in any medium or format, with an identification of the authors and its initial publication in this journal. Authors are encouraged to post and distribute their articles immediately after publication (e.g., institutional or public repositories, personal websites). Authors are allowed to enter into additional contractual arrangements for the non-exclusive distribution of the published and an acknowledgment of its initial publication in this journal.
NC (non-commercial): Users are not allowed to use the article commercially without the permission of the authors. Authors agree explicitly that the published article is indexed worldwide in databases, repositories and indexation services, even if these services operate on a commercial basis. Authors grant Journal of Educational Management and Instruction explicit the right to include the published articles in databases, repositories and indexation services.
License
License to Publish
The non-commercial use of the article will be governed by the Attribution-NonCommercial 4.0 International (CC BY-NC 4.0). The author hereby grants Journal of Educational Management and Instruction an exclusive publishing and distribution license in the manuscript include tables, illustrations or other material submitted for publication as part of the manuscript (the “Articleâ€) in print, electronic and all other media (whether now known or later developed), in any form, in all languages, throughout the world, for the full term of copyright, and the right to license others to do the same, effective when the article is accepted for publication. This license includes the right to enforce the rights granted hereunder against third parties.
Author's Warranties
The author warrants that the article is original, written by stated author/s, has not been published before, contains no unlawful statements, does not infringe the rights of others, is subject to copyright that is vested exclusively in the author and free of any third party rights, and that any necessary written permissions to quote from other sources have been obtained by the author(s).
User Rights
Under the Creative Commons Attribution-Non Commercial 4.0 International (CC BY-NC 4.0) license, the author(s) and users are free to share (copy and redistribute the material in any medium or format) and adapt (remix, transform, and build upon the material). Users must give appropriate credit, provide a link to the license, and indicate if changes were made.
Rights of Authors
Authors retain the following rights:
- Copyright, and other proprietary rights relating to the article, such as patent rights,
- The right to use the substance of the article in future own works, including lectures and books,
- The right to reproduce the article for own purposes, provided the copies are not offered for sale, and
- The right to self-archive the article.
Co-authorship
If the article was prepared jointly with other authors, the signatory of this form warrants that he/she has been authorized by all co-authors to sign this agreement on their behalf, and agrees to inform his/her co-authors of the terms of this agreement.
